My Jonah turned 16 the other day. SIXTEEN. With this birthday comes much rejoicing. Jonah was diagnosed at the age of six with a seizure disorder. He originally experienced a seizure every 5-10 seconds. Later it went down to every 10-15 seconds.
This past year he began to develop headaches, some double vision and dizziness. We of course were concerned and reported everything to his neurologist. We had some pretty extensive testing done. Jonah was fitted with 28 leads all over his head which he had to wear for a week. He also had to record himself sleeping. When the data from the testing came back, his neurologist called me himself with the news. There was ZERO seizure activity for the week Jonah wore the leads. THANKS BE TO GOD. This news was almost astonishing after a decade of worry. This does not mean he no longer has any seizure activity, but it does mean he has made great strides towards outgrowing the seizures AND can begin driver's ed! This as you can imagine is really, really meaningful to a teenage boy, but as his parents we know that the ability to drive impacts his entire life. He will be able to get to work, transport his family, teach his own kids to drive one day. All enormously impact-full.
So, we are rejoicing. He has another MRI on Monday, but right now - rejoicing. We had a big party - celebrating the milestone birthday as much as the results of the testing. This child, for whom I have prayed unceasingly - is beginning to blossom in so many ways. He is funny. He has a best friend (to whom I give a lot of credit for Jonah coming out of his shell). He is doing very well in school. This was one of his leap years. He tends to grow, developmentally, about every two years. Just when you think the last stage is going to go on forever, this kid makes a giant leap, and suddenly grows into himself SO MUCH.
Oh, and did I mention his deep, deep voice (sounds just like his dad) and his skinny, 126 pound, 5 foot, 10 inch frame? Or the fact that he gets out of bed at 2 in the morning to eat? Or that the last couple of times he has gone with us to the pool there were young ladies clamoring for his attention, to which he gave the cool guy "What's up?" nod? Where did my baby go?
As much as he has changed, he is still the guy who is a great big brother who comes up at night to kiss Priscilla goodnight. He is still the guy who gathers his baby sister up in his arms for a hug, or takes her for walks in her little car. He still loves video games and computer anything. He is fantastic at geometry and horrible at algebra. He doesn't like to read, but is getting so much better about it.
This guy, with his heart stopping, shy smile, his generosity, his kindness and his loping, dinosaur walk. I love him to bits and am so, so proud of him. Thrilled for him, too.
This past year he began to develop headaches, some double vision and dizziness. We of course were concerned and reported everything to his neurologist. We had some pretty extensive testing done. Jonah was fitted with 28 leads all over his head which he had to wear for a week. He also had to record himself sleeping. When the data from the testing came back, his neurologist called me himself with the news. There was ZERO seizure activity for the week Jonah wore the leads. THANKS BE TO GOD. This news was almost astonishing after a decade of worry. This does not mean he no longer has any seizure activity, but it does mean he has made great strides towards outgrowing the seizures AND can begin driver's ed! This as you can imagine is really, really meaningful to a teenage boy, but as his parents we know that the ability to drive impacts his entire life. He will be able to get to work, transport his family, teach his own kids to drive one day. All enormously impact-full.So, we are rejoicing. He has another MRI on Monday, but right now - rejoicing. We had a big party - celebrating the milestone birthday as much as the results of the testing. This child, for whom I have prayed unceasingly - is beginning to blossom in so many ways. He is funny. He has a best friend (to whom I give a lot of credit for Jonah coming out of his shell). He is doing very well in school. This was one of his leap years. He tends to grow, developmentally, about every two years. Just when you think the last stage is going to go on forever, this kid makes a giant leap, and suddenly grows into himself SO MUCH.
Oh, and did I mention his deep, deep voice (sounds just like his dad) and his skinny, 126 pound, 5 foot, 10 inch frame? Or the fact that he gets out of bed at 2 in the morning to eat? Or that the last couple of times he has gone with us to the pool there were young ladies clamoring for his attention, to which he gave the cool guy "What's up?" nod? Where did my baby go?
As much as he has changed, he is still the guy who is a great big brother who comes up at night to kiss Priscilla goodnight. He is still the guy who gathers his baby sister up in his arms for a hug, or takes her for walks in her little car. He still loves video games and computer anything. He is fantastic at geometry and horrible at algebra. He doesn't like to read, but is getting so much better about it.
This guy, with his heart stopping, shy smile, his generosity, his kindness and his loping, dinosaur walk. I love him to bits and am so, so proud of him. Thrilled for him, too.
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